7 Quotes on What It’s Like to Have Traumatic Brain Injury
Understanding Traumatic Brain Injury
Often referred to as an “invisible disability”, traumatic brain injury (TBI) may not be obvious to other people, but its effects can be profound, even life-changing. Many survivors have trouble managing their behavior, keeping their emotions in check, retaining memories, focusing on tasks, socializing with others, and so on. Yet, in spite of having a very real and very devastating condition, they are often misunderstood because people without TBI can’t really know what it’s like.
To help bridge this gap of understanding, we have asked people affected by TBI to share their experiences and thoughts. This is what they had to say:
“Patience and empathy go a long way in keeping us positive and moving in the right direction.” – Janelle
“Sometimes I need compassionate company, sometimes I need solitude and rest. Sometimes I need comforting words, sometimes I need jokes to make me laugh. Ultimately, I need empathy.” – Kathryn
“I am still an intelligent and capable individual. Don’t tell me what I can or cannot do!” – Patricia
“Never, ever assume a person who has difficulty communicating is dumb and has nothing to say. People with TBI still have interesting and complex thoughts – it just takes us more time to form them into words.” – Solomon
“It’s hard for me to remember things, to ‘turn it on’ for long periods of time. So don’t fault me for being lazy because I need more rest than you do. I just work a different way.” – Alfred
“Yes, there are times when I sorely miss the old me. But this is who I am now, and I’ve come to embrace the new me.” – Joshua
“No, we’re not the same person we used to be. But we’re alive and we can still thrive. Yes, it takes us a lot more strength and determination to get past our failures and learn new things, but the effort is well worth it.” – Daphne
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